THE AMBASSADORS
Down
Syndrome EncyclopediaTHE AMBASSADORS
Down
Syndrome Encyclopedia
Volume 2, Issues 3
July 1999
Chris Burke & Friends:
Defeating
Down Syndrome
by Dr. T. I. Farag FRCP (Edin)
Down Syndrome (DS) is the most common chromosomal abnormality, occuring in approximately 1 in 700 births. It occurs in all races, ethnic groups, socioeconomic classes, religions and nationalities. It also occurs evenly in both boys and girls. The Ambassadors presented, in previous issues, how DS is a worldwide medico-social problem with approximately two million persons having Trisomy-21 and the success stories of Chris Burke, the Ambassador of the National Down Syndrome Society (NDSS), and his gifted friends who strive alongside their families to defeat DS.
 |
 |
 |
In this Down Syndrome Encyclopedia, we present
ARTICLES,
BOOKS,
CONFERENCES, and
DS LINKS of different DS societies,
as part of an international project entitled:
"DOWN SYNDROME ENCYCLOPEDIA AND THE MAGIC CURES".
Articles:
Chris Burke & Friends: Defeating Down Syndrome (Parts 1)
[Part 2 in Issue 4
& Part 3 in Issue 5]
My child with Down Syndrome
Dr. Sadika Al-Awadi, MD(Dublin), FRCP(Edin)
Books:
Down Syndrome:
A Promising Future, Together
Editors - T.J.Hassold & D.Patterson
Camille
Geraldi's Family:
An Unsual Love Story from Miami
- a special feature article on adoption
& parenting
Down Syndrome: Living and Learning in the Community
Editors- L.Nadel & D.Rosenthal
Scotland's
Sheenagh wins Gold
- a
book review on DS from Edinburgh
Conferences:
7th World Down Syndrome Congress
23-26
March 2000 - Sydney Australia
The Congress is
the first world congress on down syndrome to be held in the Asia
Pacific region. It is an excellent opportunity for people with
Down syndrome, their families, and professionals to hear elegant
speakers address the latest developments in many areas affecting
people with Down syndrome.
Down Syndrome Links
Association for Children
with Down Syndrome
(ACDS)
This organization is based in New York and focusses on providing support and facilities for children with DS in that area. Various service models are available to families to meet their individual needs.
Canadian Down
Syndrome Society (CDSS)
The Canadian Down Syndrome Society provides information and assistance to all those with an interest in Down Syndrome, by advocating on behalf of individuals with Down syndrome in the areas of education, employment and healthcare and by providing networking opportunities for parents and professionals in relevant fields.
An illustrated interesting site containing stories from parents explaining what it is like to have a child with Down Syndrome and how to cope.
The DownsCity provides a forum for information impacting the DS World while "opening up" the Internet to any and all members of the Down syndrome community.
Down Syndrome Association
of Singapore
This organization's goals are to provide support for people with DS, enable them to attain thier full potential, help them to lead a normal life, and thus be able to contribute to society. They also educate the public in Singapore on Down Syndrome
Down
Syndrome- Health Issues Page
This site is a GOLDMINE of medical information about Down Syndrome. It is maintained by Dr. Len Leshin, a distinguished paediatrician. He has published a plethora of articles which are beneficial to parents and medical students.
European
Down Syndrome Association (EDSA)
The goals of this organization include spreading throughout all European nations the principle that every person with Down's syndrome has the right to receive the health care and educational services and to stimulate the implementation of a network of local groups made up of parents and professionals. There is ongoing exchange of information among the European countries on those programs that have proved to be effective.
FUNDACIÓ CATALANA SÍNDROME
DE DOWN (FCSD)
This Spanish organization works to provide a better quality of life for persons with DS and help them to achieve social inclusion.
Provides information about DS and links to various other DS related sites on the web with a list of interesting books on DS, both in German and English languages.
JSDN--Japan Down
Syndrome Network (JDSN)
JDSN home page made by the Ibaraki Down Syndrome Association in 1995. The Japan Down Syndrome Committee was organized by parents, professionals relating to DS people in Japan to construct a better home page and databese and communication network for DS people.
March of Dimes
Information on Down syndrome
Contains information on what DS is, what medical problems are associated with DS, about school, marriage, pre-natal testing and more!
National Association for Down
Syndrome (NADS)
This organization was founded in Chicago in 1961 by parents of children with Down syndrome to create a better environment and bring about understanding and acceptance of people with Down syndrome.
National
Down Syndrome Congress
The National Down Syndrome Congress is an American advocatory organization for Down syndrome that provides leadership in all areas of concern related to persons with Down syndrome. The NDSC is a major source of support and empowerment to persons with trisomy-21 and their families.
Penang Down Syndrome
Support Group
This Malasiyan group offers support and encouragement for parents and families of children with Down Syndrome and provides assistance to DS patients to enable them to contribute to society. This group educates the community about DS, in order to form the Penang Down Syndrome Association in the future.
This association works to support the community to develop the potential of people with Down syndrome to live a valued life.
Stichting Down Syndrome, Netherlands
Dutch Only. Includes links, information about early intervention, and much more!
This comprehensive site was established in February of 1995 and is compiled from the contributions of members of the Down Syndrome Listserv and others. It includes information on ongoing/upcoming events relating to Down Syndrome, support groups, conferences, books, and links to other DS organization/sites world-wide. A great guide for research on the WWW.
The
National Down Syndrome Society (NDSS)
The National Down Syndrome Society assists families in addressing the needs of children born with DS, encourages young scientific researchers, sponsors internationally renowned scientific symposia, advocates on behalf of families and individuals affected by this condition, and provides information and referral services
United Kingdom Organisations for Persons
Concerned with Down Syndrome
This site includes a compilation of addresses and telephone numbers for organizations in the UK that pertain to DS, and the available educational resources in Britain.
This site celebrates the uniqueness of people with Trisomy 21. For new parents with DS babies, they could benfit by joining this friendly online group to learn more about living with a little something extra!!!
This site is dedicated to those who have had their lives touched by Down Syndrome. It includes portraits of DS today and in the past, medical definition of DS, links to other sites on the web, and personal stories. .
If you wish that any other Down Syndrome link be added to this constantly growing list, please email to the Ambassadors's DS Encyclopedia at: mail@ambassadors.net
